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Family holds fundraiser to help with 8-year-old’s medical expenses

Eight-year-old Jesse was diagnosed with Idiopathic Intercranial Hypertension last February, an extremely rare condition which mimics the signs and symptoms of a brain tumor.
Published: May. 2, 2021 at 5:56 PM EDT
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ESCANBA, Mich. (WLUC) - Eight-year-old Jesse was diagnosed with Idiopathic Intercranial Hypertension last February, an extremely rare condition which mimics the signs and symptoms of a brain tumor.

“We know that it is also called AKA Pseudotumor Cerebri, meaning that it is a false tumor on his brain that will be there for the rest of his life,” Jesse’s mother, Ashley Groleau said.

He suffers from severe headaches, blurry eyes, sensory issues, premature puberty, and the struggles of coping, and there is no cure for his condition.

“It’s pretty much a buildup of pressure on the brain. So, we can take medication to slow that pressure down. The biggest concern at this point is that he has had some vision changes. The vision changes can and will lead to blindness eventually,” Groleau said.

In addition to this, Jesse is also suffering from an underlying autoimmune disease as well as a blood disorder, but right now, the severity of those are unknown.

To receive treatment, the two of them travel to The Children’s Hospital in Milwaukee every 3 to 4 days, and Groleau is no longer able to work because of the travel and treatment schedule, which is why the family reached out to the community for support and held a can drive and bake sale to help with travel and medical expenses.

“We are unable to stay at the Ronald McDonald house due to COVID right now, so we are having to pay out of pocket for motels, food, and everyday cost and living,” said Groleau.

And they cannot thank the community enough.

“We don’t have a lot for support within our immediate range so to have the community support has been really nice for us. We’re overwhelmed to say the lease for the amount that came in,” she said.

If you missed the event, cans and bottles can still be dropped off at the home located at 1225 Washington Street in Escanaba and a benefit is being planned for Jesse in July.

To donate to the family’s GoFundMe, click here.

A PayPal donation can be sent to ashley2005424@gmail.com and an account at Huntington Bank and Great Lakes First Federal Credit Union has been set up to recieve donations.

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